Two women sitting in the Anne Rowling Clinic looking at a leaflet together.

Huntington's disease clinic

Huntington's disease clinic

Huntington's disease clinics are facilitated bi-monthly.

Referrals come from the department of clinical genetics in Edinburgh who work in collaboration with other services to identify Huntington's disease families living in Lothian and the Borders.

Both new and review patients are seen at the clinic. The initial visit and assessment will last approximately 2 hours. The assessment includes a comprehensive review of past medical history and a specific assessment of clinical symptoms and how they impact on daily living.

Patients will be followed up yearly thereafter with relevant intervention provided between visits.

Research opportunities

As a research-care facility, you will be given the opportunity to take part in any relevant research projects. You can register your interest in research by signing up to Rowling CARE. Participation in research is completely voluntary and will not affect patient care. Patients will also be invited to take part in the Huntington's Disease Register. The purpose of the Register is to develop better insights and understanding about disease progression and to facilitate interventional clinical trials.

Personnel

Professor Mary Porteous, Consultant and Lead Clinician for Clinical Genetics, SE Scotland

Philip Green

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