FutureMS Phase 2 Study

The FutureMS-2 Study - inviting previous participants to continue their participation.

Condition(s)

  • Multiple sclerosis

Project type

  • Understanding the condition

About the project

FutureMS-2 is the next phase of a research project created in direct response to questions people with MS frequently ask their doctors.

Every person newly diagnosed wants to know how MS will affect them over their lifetime, what can be done to stop the disease progressing and improve their quality of life. FutureMS aims to help answer those questions.

In the first phase of the FutureMS study, we collected a huge amount of invaluable data from 440 participants newly diagnosed with MS across Scotland. Participants took part within 6 months of their diagnosis and then again 12 months later. Our researchers are now busy analysing this information. 

What's next?

Multiple sclerosis is a long-term condition. Therefore to really understand the impact of MS at the level of the individual, we need to not only map what happened to someone at the point of their diagnosis, but also to follow up these same individuals over time. In the new phase of FutureMS, we are inviting participants to take part again at five and ten years after their diagnosis.

Based on this, the new wave of FutureMS has some new additions. Examples include more of a focus on invisible disability symptoms like pain and fatigue, and wider access to sub-studies at different sites.

The first centre to re-open is at the Anne Rowling Clinic. Other centres will also re-open to participants in Glasgow, Dundee, Aberdeen and Inverness.

The FutureMS team are incredibly grateful to everyone who has, and will continue to, take part. Each participant in the FutureMS study is irreplaceable and our research team is looking forward to continuing the journey for many years to come. 

 

Phase 1 FutureMS - the numbers so far

In phase 1, participants took part in clinical assessments that included completing questionnaires about their health and lifestyle as well as measurements of physical abilities (for example, walking speed) and cognitive - thinking and learning - skills (for example, tests of arithmetic). The participants also underwent a brain scan, and donated a blood sample for DNA analysis.

What do I need to do?

If you were a participant in the first phase of FutureMS, you don't need to do anything. The team will contact you to discuss phase 2 and whether you would like to continue helping this study.

If you were not a participant in the first phase, we regret that you won't be able to join this study. We are following up the cohort of 440 people so that we can build up a large amount of data from these individuals over time.

Funder(s)

Anne Rowling Regenerative Neurology Clinic

Publication(s)

Status

Recruiting now

Contact

Christine Weaver
future-ms@ed.ac.uk
07760540257

Eligibility criteria

Restricted recruitment of previous FutureMS participants only.

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