Doctor listening to older gentleman patient at a clinic appointment

Motor neurone disease (MND) clinic

Motor neurone disease (MND) clinic

Our team runs a fortnightly multi-disciplinary MND specialist clinic that integrates care with current research.

On the first visit, you will meet one of the two neurologists and one of our nurse specialists. They will discuss the diagnosis, help decide what your needs are, and arrange any further tests required.

You will have access to specialised services such as ventilatory support

Subsequent visits can be planned after the initial consultation.

We very much encourage you to bring your partner and/or close family/carer to the consultation, and recommend that you think in advance about any questions you might like to ask, possibly noting these down in a note-pad to bring along with you. If you are on any regular medications then bringing along a list of these is also helpful.

CARE-MND

CARE (Clinical, Audit, Research & Evaluation)-MND is a platform under the Rowling CARE banner to integrate clinical care with research for people with MND across Scotland. By maintaining a comprehensive and detailed register of people with MND, healthcare professionals can ensure ongoing comprehensive monitoring of patients and provide access to research regardless of geography. The teams can also evaluate and audit care provision to harmonise the highest possible care across all regions in Scotland.

CARE-MND has its own website where people with MND can sign-up and access useful information about their care team and research opportunities.

Visit the CARE-MND website

MND research

MND research is conducted in close collaboration with the Euan MacDonald Centre for MND Research. The Euan MacDonald Centre is based at the University of Edinburgh and is a not-for-profit, charitable network of over 200 researchers across Scotland. The Centre uses research to improve the lives of people living with MND and related conditions.

Personnel

Neurologists:  Professor Siddharthan Chandran, Dr Richard Davenport

Scottish MND Lead Consultant Nurse:  Judith Newton

MND nurse specialists:  Gill Stott, Alison McEleney

Speech and language therapist:  Dr Phillipa Rewaj

Ventilation team:  Dr Anthony Bateman, Karen Hendry, Claire Hogg

Research Project Co-ordinator:  Dawn Lyle

Research Clinical Fellows:  Dr Liz Elliott, Dr Kiran Jayaprakash, Dr Suzanne Quigley

Research Nurses:  Hanne Haagenrud, Christine Weaver

Research Support: Emily Beswick, Denise Cranley, Carol Ostrowski, Norma McDonald

 

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